Welcome to Living With Nephrotic Syndrome online support group for patients, friends and families affected by Nephrotic Syndrome.

Please share your symptoms (everyone IS NOT the same) and treatment experiences. No one should feel alone in their Nephrotic Syndrome Experience.

This is Living With Nephrotic Syndromes main discussion Area for both general and specific topics about Patients and Families affected by Nephrotic Syndrome

Feeling down? Need to rant? This is the place!

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.

Anyone whose life has been touched by a rare disease is welcome in a Ben’s Friends community. Most of our members are patients, but we have spouses and parents, besties and caregivers here as well.