Welcome to Living With Nephrotic Syndrome online support group for patients, friends and families affected by Nephrotic Syndrome.

Please share your symptoms (everyone IS NOT the same) and treatment experiences. No one should feel alone in their Nephrotic Syndrome Experience.

Share everyday experiences, challenges, and tips for living with nephrotic syndrome. Connect with others who understand. You are not alone.

A place for patients, parents, and caregivers to share advice, ask questions, and support each other in the daily journey with nephrotic syndrome.

Our mission at Ben’s Friends is to ensure that patients living with rare diseases or chronic illnesses, as well as their caregivers, family, and friends, have a safe and supportive place to connect with others like them.